As most of you already know, Rylan is scheduled to have her open heart surgery on Thursday, June 4th at 6 a.m. at OU Children's Hospital. We created this blog in hopes that it will be the easiest way to try to keep everyone posted on Rylan. Please continue to pray for Scott, Rylan, and myself as this is going to be a very long week for all of us. As much as we dread this week, we are just so ready to get it over with so we can put it behind us and get on with our lives!
For those of you reading this that don't know the details here is the myspace blog I wrote on January 13, 2009 that explains Rylan's condition and her need for open heart surgery.
About a month ago Rylan's doctor discovered that she had a heart murmur. For precaution he referred us to a pediatric cardiologist in Oklahoma City. Yesterday was our appointment with the pediatric cardiologist. After they did an ekg and an ultrasound they said Rylan has ASD (Sinus Venosus Type) and Partial Anomolous Pulmonary Venous Connection.
This condition will require that she have open heart surgery to repair it. Our doctor reassured us that this is one of the most common surgeries that they perform and that it has a very high success rate that this would be the one and only surgery required to fix her problem. The doctors say that it is not urgent and that she can resume all normal activities until the surgery. The doctors recommended that we schedule the surgery this summer so it will be easier on Rylan. They said she will be in the hospital for approximately 4 days and have a recovery time of 4-6 weeks.
They said that this was something Rylan was born with and that this is usually the age they catch it. It is something that has no effects on her now. It only becomes harmful at a later age if not repaired. So it is a blessing that the doctors caught it when they did.
As you can imagine, this was a great deal to take in during a two hour doctor visit! Not at all what we expected. So far Rylan is doing great. I don't think she completely knows everything that is going on, but since the surgery is so far away we aren't saying much to her now. No need for her to worry about it, I think Scott and I are doing plenty of that for all of us!!!
We are supposed to go back to see the doctor in April so they can run a few more tests and we can set a date for the surgery. So for now it is all a waiting game. Until then we are just trying to stay strong for her and constantly praying that God will help us through this.
